Medical and Health Data Abstracts |
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Medical
and Health Data
Behavioral and Social Science Data Data Policy Detailed ProgramList
of Participants About the CODATA 2002 Conference
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1.
The Visible Human Project® Image
Data Sets The Visible Human Project® Data Sets resulted from a recommendation of the National Library of Medicine (NLM) Board of Regents' 1987 Long Range Plan that stated the NLM should "thoroughly and systematically investigate the technical requirements and feasibility of instituting a biomedical images library." At the suggestion of an expert panel convened by the Board and reporting in April 1990 that - "NLM should undertake a first project, building a digital image library of volumetric data representing a complete normal adult human male and female. This 'Visible Human' project would include digital images derived from computerized tomography, magnetic resonance imaging, and photographic images from cryosectioning of cadavers." - the University of Colorado was contracted in August 1991 by NLM to undertake collection of this "Visible Human" image data set. In November 1994 the Visible Human Male data set was announced and released to the public, followed one year later by the Visible Human Female. The data sets are available via FTP at no cost, to anyone holding a no cost license. Each image: CT, MRI and cryosection is stored as a separate file; can be downloaded singularly or in any number up to the entire data set. Several mirror sites have been established to facilitate download for international license holders. The images also can be purchased on tape for a fee from the National Technical Information Services (NTIS). This session will include a discussion of the genesis of the Visible Human Project®, a description of the University of Colorado's cryosectioning procedures, and descriptions of several of the more interesting and notable outcomes developed by license holders who have used The Visible Human Project® Data Sets.
The technology for imaging in medical applications continues apace. This increases the potential for improvements in medical research, diagnostic procedures, and patient care. On the other hand, the increase in imaging activity also increases the shear volume of data that must be dealt with. The imagery may be reviewed for immediate diagnostic procedures and discarded. Or it may be stored or archived for further use. However, storage or archiving is effectively discarding unless effective means for recovering the data exist. Accessibility is an essential component of developing and distributing new knowledge from growing data volumes. This paper will discuss specific approaches to improving accessibility of large image databases like that of the Visible Human Project. Real time navigation in 2D and 3D of image databases as well as user interfaces designed for public and academic use will be outlined. The presentation will be illustrated with some thousands of images from the Visible Human Project. In 1999, the National Library of Medicine (NLM) awarded six contracts to develop a registration and segmentation toolkit. The overall objective of the project is to produce an application programming interface (API) implemented within a public domain toolkit. The NLM Segmentation and Registration Toolkit supports image analysis research in segmentation, classification and deformable registration of medical images. This toolkit meets the following critical technical requirements identified by the National Library of Medicine:
In addition to the technical challenges presented by these requirements, the selected team and subcontractors, had to work as a distributed group. The software development experience of the groups also varied. Some members had created software for a large community while others had only developed software for their local groups. The team defined a web centric software development process modeled after the Extreme Programming approach that relies on rapid and parallel requirements analysis, design, coding and testing. Communication through web based mailing lists and bug trackers was supplemented with conventional telephone conferences. The first public version of the software is scheduled for release in October, 2002. This talk discusses the chronology of the project, the core architecture and algorithms as well as the light weight software engineering processes used throughout the project. Finally, we present lessons learned that will be of value to future distributed software development projects.
4.
The Visible Human Data Sets: A Protoype and a Roadmap for
Navigating Medical Imaging Data The Visible Human Data Sets are to date the most complete, multi-modality data sets of human anatomy. The computational challenges posed have been widely discussed and many of them have been or are being solved by experts in various aspects of medical image analysis and medical informatics. Their approach, which has proved profitable, is to regard the Visible Human as a vast collection of bits, single and multi-channell images, with little regard to its intrinsic content B human anatomy. This approach allowed them to solve computational problems that had appeared overwhelming at the inception of the project: powerful servers can make available the individual images, manipulate and display them in various ways, on the desktop of end-users. An example of such solution implemented by computer scientists is the EPFL Server. The more specific problem, of how to use this unique information in medical research has been less often addressed. One reason for this, is that the data is vast, its manipulation seemingly unwieldy for anatomists, until now more versed in using scalpels than mouse buttons. Another reason is, the inherent novelty of the data: for the first time, it opens the possibility of a quantitative approach to anatomy. However, this quantitative approach can be best exploited by first defining problems in anatomy, anthropology, pathology in these terms. I will discuss two basic aspects of the Visible Human Project as a landmark data set:
The aim of this
presentation is to present the problems related to medical
imaging data to experts in other fileds, in such manner,
that it may spark a mutually profitable dialog with hitherto
alien disciplines.
1.
Field Data Collection for the Malaria Research Network in Kenya
2.
Eye witness account: the role of IT and data management in expansion
and change at a remote research unit in Kenya From the KEMRI-Wellcome Trust research unit on the coast of Kenya comes Tom Oluoch, systems operator/data manager and co-creator of a virtual library for this site, which brings together researchers from Kenya Medical Research Institute and Oxford University. His eyewitness case study is full of concrete examples of how IT and data management have brought expansion and change to this remote research unit.
3.
CDC in Zimbabwe: strengthening regional surveillance and laboratory
measures, supporting infrastructure development and promoting
technology transfer Bob Mayes is Chief, Health Informatics Section, Zimbabwe CDC AIDS Program. CDC's program of technical assistance to Zimbabwe focuses on strengthening surveillance and laboratory measures, scaling up promising prevention and care strategies, supporting behavior change communication projects, data mining, semantic management of data for systematic review, and promoting technology transfer.
4.
Complex Data From Health Research
Statisticians in this area are investigating ways of dealing with these problems.
1.
New information systems for the public healthcare insurance
organization : the Catalan Health Service (CatSalut) in Spain Key words : information
systems, health care organisation, insurance, risk management,
data. Ten years after
its creation, the Catalan Health Service (SCS) is initiating
a reorientation process aimed at consolidating its role as the
public healthcare insurance organization for all citizens of
Catalonia. This reorientation involves generating a series of
actions oriented more towards attention to the insurance holder/citizen,
while maintaining a close relation with the suppliers of healthcare
services from the public network. 1. Definition of the SCS's management needs Aims: These aims involve a series of needs that must be taken into account when developing new management and information systems.
In order to specify these aims, a series of management levers has been devised: To manage resources Moreover, this has to be specified using pre-established follow-up parameters for drawing up the management reports. 2. Evaluating the developments and structure required The proposal for the basic structure of the new information systems is based on three concepts and their corresponding identifiers: - The insurance
holder = personal identification code (CIP) It has been planned that the different computer applications will work on a large data warehouse that will compile all activity (contracts of insurance holders with the productive structure) and which must make possible the generation of different views for each of the functions (see Graph 1). The system has been graphically represented as a pyramid divided transversally into three parts. The lower trapezium shows the database (information) ; the middle, the computer applications (the treatment of information); and the upper triangle, the management information system. The design of the information system is structured around four basic areas: demand, offer, activity and economy-finance (see Graph 2).
2.
The planning and management of emergency treatment in Catalonia,
by means of a specific information system Key words : information
systems, emergency, health care organisation, planning, data. The Overall Emergency Plan has been used in Catalonia for the past three years. This is a global scheme that includes planning, precaution and prevention, management and supervision of emergency healthcare attention. It was created, above all, for those times of the year when there is an increased demand for healthcare attention for a variety of reasons. The Plan includes:
The information
system
Dans le cadre d'un réseau de soins, le praticien et l'usager ont accès à un ensemble d'informations le concernant. Les informations sont réparties dans différents services d'un même hôpital voir plusieurs établissements. Dans ce système intervient la nature (typologie des informations), leur localisation et les volumes concernés, notamment les données informatiques lorsqu'il s'agit d'imagerie médicale. Les réseaux à haut débit sont de nature à offrir des possibilités de connexion entre ces différentes sources pour une exploitation optimales dans les services de cardiologie. Lorsqu'il s'agit de données numériques et textuelles, les techniques de datamining et textmining pourront être utilisés dans le but de produire de l'information à valeur ajoutée dans le cadre d'un fonctionnement opérationnel voir dans un contexte de recherche. Lorsqu'il s'agit de sources d'images leur mise à disposition immédiate et interactive offre des possibilités et des perspectives d'animation et représentation dans un contexte opérationnel. La mise en place d'un système d'informations multisources en réseau nécessitera de traiter avec une attention particulière les problèmes de sécurité et de propriété de données.
4.
Données et santé : propriété,
accès, protection, transmission. Les enjeux des réseaux
de santé Mots clés
: propriété des données, confidentialité,
dossier médical patient, réseaux de santé,
autoroutes de l'information. Nous évoquerons
ensuite une autre question déterminante : l'accès
du patient à la consultation de ses données
de santé personnelles. En France, la nouvelle loi du
4 mars 2002 a posé de grands principes mais a laissé
de nombreuses interrogations en suspens. Cet accès
se fera-t-il directement ? Indirectement par le biais d'un
médecin ? Et à quelles données le patient
aura-t- il accès ? A l'intégralité de
son dossier ou à un résumé ? Aura-t-il
également accès aux commentaires des praticiens
? Nous tracerons des pistes de réflexion pour éclairer
toutes ces questions. En terme de propriété
industrielle et intellectuelle, se pose aussi la question
de la brevetabilité et de la protection des logiciels
de création, de gestion ou de diffusion du dossier
médical patient. Les dossiers médicaux patients
sont-ils protégeables ? Les critères de brevetabilité
classiques s'appliquent-ils ou non à eux ? Ou bien,
constituent-ils des " business methods " et, dans
ce cas, comment les protéger ? Les réponses
peuvent varier selon les pays. Nous aborderons ces questions
à travers une comparaison entre les possibilités
offertes en France et aux Etats-Unis.
5.
Les réseaux de santé : une expérimentation
française centrée sur le partage de l'information Mots clés
: réseaux de santé, systèmes d'information,
information partagée. Depuis le début
des années 1980, l'ensemble des grands pays industrialisés
sont confrontés au problème de la maîtrise
des coûts de leurs systèmes de santé et
en particulier de ceux de l'hospitalisation. Une solution
envisagée a été le " virage ambulatoire
" visant à privilégier la médecine
de ville en s'appuyant sur les nouvelles technologies de l'information
et de la communication (NTIC). En France, une voie originale
a été expérimentée : les réseaux
de santé. Elle a été légitimée
par la loi du 4 mars 2002 relative au droit des malades et
à la qualité du système de santé.
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Last site update: 15 March 2003
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